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Community Blog

Photosensitivity and RA Drugs

Posted by LynW
20 Apr 2011

This question has arisen several times both on the forum and on HU so I thought I would 'blog' my thoughts so they can be more easily found in the future!

It’s a tough call but a necessary one. Another juggling act that is included in the RA circus. Do we allow ourselves the ...

Community Blog
Catwoman66

Onward and upward?

Posted by Catwoman66
15 Apr 2011

Sulfasalazine, Methotrexate and Plaquenil give me severe allergic reactions. Leflunomide holds the disease back but doesn't stop it from spreading so two weeks ago I discussed anti TNFs with my consultant.

I researched both Enbrel and Humira but to be honest I just don't ...

Community Blog
Seffarig

Home Delivery Service

Posted by Seffarig
5 Apr 2011

Does anyone have their meds delivered? I ended up having my MTX delivered by the HomeService, organised by my consultant, as my GP wouldn't prescribe the injections, even though the tablets made me sick.

Got a call from them to say Meds would be delivered to me at work. I ...

Community Blog

Rheumatology ... ... DIY?

Posted by LynW
23 Mar 2011

The call came!! I could hardly believe it... my rheumatologist on the other end of my phone on a Monday afternoon. Do you suppose she’d got wind of the fact I might be considering a second opinion?

Anyway up, she was ringing to update me on two main issues but had waited to see if ...

Community Blog

Oesophagus, pills and water......

Posted by Julie55
16 Mar 2011

Some time last week I had had trouble swallowing my fluoxetine and felt it got stuck. I rang the out of hours doctor and he told me to take some rennies or gaviscon and keep eating and drinking, because it sounded like the tablet got stuck and then dissolved in my gullet. So any way, I was ...

Community Blog

Ordinary Miracles

Posted by JenEastman
14 Mar 2011

I've been quiet for a while as I let the methotrexate and enbrel soak in, and knock on wood, it's doing wonders!! It's only been a month, and I am feeling really good. I am also weaning off the predisone (I swear it makes me crankier than usual). Coming off the predisone has left my ...

Community Blog
RA-Fibro

Yeah I got the go ahead for Enbrel!!

Posted by RA-Fibro Volunteer
13 Mar 2011

Friday I got the phone call Ive been waiting for I finally got the prescription signed for Enbrel.
Ive been told for over 12 months that they (rheumys) want me to go on this, but its took all this time for them to get it sorted for me.
Now I know its coming I feel sick! I am hoping ...

Community Blog
slatch

My Journey

Posted by slatch
9 Mar 2011

Hello everyone my name is Andy, I hope this is OK it’s my first ever blog and I am new to the site.
Firstly I would like to say how marvellous the site is, and how supportive everyone is. (We are not alone, no matter how much it seems we are!)

It all began in September 2008 for ...

Community Blog

Hi everyone,New Blogger! Where do I start??

Posted by mand
7 Mar 2011

Having had RA for 16yrs I don't really no where to begin but I'll try my best to share my good and bad times with you all.
Having tried to conceive for 10yrs and going through a failed ivf I then had 2 miscarriages and an ectopic pregnancy. I then got pregnant again but at the ...

Community Blog

Right you lot its like this..............

Posted by Julie55
4 Mar 2011

I went for my 12 week nurse appointment yesterday and i would say that 12 weeks is about enough time manging this crap disease on your own. I didn't realise how much it was getting me down, until I was sat opposite my lovely kind understanding nursey telling me how well i am doing. All I ...