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elrose

Catch up

Posted by elrose
20 Dec 2012

Its been a wee while since I posted, December is a ridiculously busy month, my eldest has a birthday and turned 8 which involved shopping and party arranging. Then there is a full schedule of school based christmas events for both (youngest is in reception) which have all been very pleasant. On ...

elrose

Seen this?

Posted by elrose
19 Nov 2012

http://www.mirror.co.uk/lifestyle/health/arthritis-cure-major-breakthrough-by-university-1440374

Check it out - sounds positive..

hope all are okay, may you soon be if not xx Linda

elrose

First Rituximab..

Posted by elrose
31 Oct 2012

Well I finally had my first Rituximab infusion today after the debacle of the first attempt. No problems, feeling okay - bit stiff and tired for being sat over 6hrs but aside from that medically speaking all good.
That said there were some issues, I had taken a friend with me (and fair ...

elrose

Atos - your life in their hands

Posted by elrose
6 Oct 2012

I am fortunate in that I am still able to work, know many on here are not (but would love to) I read all the blogs about the stress caused by reviews for benefits, isnt it about time that ATOS are made to explain themselves or the contract moved elsewhwere?

...

elrose

Not my hospitals finest hour

Posted by elrose
3 Oct 2012

Well turned up for my Rituximab infusion this morning, checked in, went where directed..As I walked into the infusion room the nurse looked at me quizzically and said 'but your treatment was cancelled' wtf!! Turns out that following my vacation ref my wrist my consultant had decided ...

elrose

Rituximab - Appointment through

Posted by elrose
26 Sep 2012

Well after my lovely enforced vacation at my local NHS hotel last week have been taking my horse-size antibiotics and am doing okay (although getting frequent tummy aches - assume down to the massive antibiotic dose) Got in to find my Rituximab appointments (assume its them cos letter doesnt ...

elrose

Enforced Vacation

Posted by elrose
21 Sep 2012

Well peeps, eventful week had a problem with wrist on Monday, went to docs and ended up in hospital with suspected Septic Arthritis. Four days of IV antibiotics and am home with more drugs than they left in the pharmacy lol. Wrist is strapped but a lot better than it was. Back to work on Monday ...

elrose

Hi ho, hi ho - for Rituximab I go...

Posted by elrose
1 Aug 2012

Have received my copy of consultants notes from beginning of month (July) it does amuse me the subtle changes of diagnosis each time, this time I have Feltys with Neutropenia and Lymphocytopenia, Cervical Spondylitis (?) and Asthma (who knew - lol) Last time it was Sero Positive RA with Feltys ...

elrose

Biologicals for me, whoop whoop lol

Posted by elrose
13 Jul 2012

Having failed MTX and Ciclosporin now on Hydroxy, been on steroids for almost 3 yrs my Rheumy has decided Rituximab is the way to go. Looked online (generally and on here obv) and am reasonably positive about it. In our area you have to apply to the local PCT for approval (due to cost I ...

elrose

Having a down day..

Posted by elrose
16 Jun 2012

Am feeling really rubbish today, house is a tip, kids want entertaining and I simply want to go hide my head under covers. Having unsuccessfuly tried GCSF injection to tackle the Feltys am currently getting no treatment (still on prednisolone and Hydroxychloroquine for RA) so am constantly ...

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