New research dare we have hope?!??

donnalouisec
Posted by donnalouisec
12 Feb 2013

Sick of taking lots of meds including anti tnfs which are currently having very little effect. When I stumbled on this

www.arthritisresearchuk.org...

Has anybody else heard of the trials and what's your views!!!

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13 comments

Josie2
12 Feb 2013
Not yet heard of this but upon reading it i just hope after all the trials its ok and goes ahead.

Seems a bit of a miracle but i can always hope.....

Thanks for info, much appreciated.

Jo
Xxxx

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summer
summer Volunteer
12 Feb 2013
I Mentioned it in a blog about two or three days ago, there was an article in daily express and dail mail.. one can keep up to date by reading a mid range daily paper.

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helixhelix
12 Feb 2013
I've seen a few reports of this recently - same story, not anything different. Sounds really positive, but I won't hold my breath as it can take a long time to get through the trials and get licensed for widespread use. I think one person on HU was invited to be on the first trial.

But here's hoping it moves quickly into production - the more choice of drugs that work the better!

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donnalouisec
12 Feb 2013
If I could I would have everything crossed for this to work. I'm on the verge of loosing my job and can see no way forward at the moment. I'm sick of being in pain and feeling tired all the time. X

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Account deleted
anonymous
12 Feb 2013

This comment was deleted.

watson3
watson3 Volunteer
12 Feb 2013
Thank you for the information. It makes for interesting and exciting reading. Thank you for sharing it with us.

Hope you feel better soon.....

Carole

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shirlthegirl
13 Feb 2013
Thank you for sharing this, it great to know that we are not being forgotten XX

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tamnwill
13 Feb 2013
Cool :o) Well done. I'm on a latest after trila drug ( infusions of Toc' ) and I think it only took 2.5 years for it to become widely available, so hopefully this one will too ( if successful)so there is every reason to be very hopeful.

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anun
13 Feb 2013
How do you sign up for a trial?, I am on Humira and Leflunomide, be interestng to consider one at the least!!

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tamnwill
13 Feb 2013
I think yr consultant suggests it, if you're having no success with current drugs and you've tried all the usual suspect!

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donnalouisec
13 Feb 2013
Well yet another restless night.. The pain in my wrists today is unbearable, looks like another day in bed for me ??. I'm totally fed up now and feeling really down. I think I'm now immune to my buTrans pain patches and my oral tamgesic painkillers... I wish I had my life back... Just gone 40 and feel 90.

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tamnwill
13 Feb 2013
Hi Donna, what anti inflammatories are you on? I can empathise with you. Do you use heat sacs at night? have memory foam pillows to put under bad joints? Voltarol gel to apply to swollen areas? Wrist supports?
Tam

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TildaT
13 Feb 2013
We've got to hope always. This sounds potentially exciting to me - and hopefully crossing fingers will become a thing of the past for us all one day soon. Tilda

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petalnumber2
14 Feb 2013
I read with interest and it sounds really hopeful. Thanks for telling us all. June

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